Rosenverse

This video is only accessible to Gold members. Log in or register for a free Gold Trial Account to watch.

Log in Register

Most conference talks are accessible to Gold members, while community videos are generally available to all logged-in members.

Designing Data Services
Gold
Wednesday, December 4, 2024 • Advancing Service Design 2024
Share the love for this talk
Designing Data Services
Speakers: Lais de Almeida and Maria Izquierdo
Link:

Summary

Cross-disciplinary collaboration is key to tackling large scale change in hypertension rates (Margins of Victory) in underserved communities (Innovation at the Margins). Low income minoritized populations have shown to have a high prevalence of hypertension but a low treatment rate . There are many factors that play a role in these statistics many of them which are historical and systemic. In order to design a hypertension study for these populations, co-design methods that emphasize collective good must be employed by a comprehensive team. Our process to build this study focused on sharing power with members of the community to decentralize the designer and build design capability with the participants. We prioritized building relationships to combat mistrust of healthcare professionals and address difficult topics like social determinants of health (healthcare access, housing challenges, employment, etc) – both key factors in high hypertension rates. This presentation will bring together the collaborative team that built the Pressure Check study. First, a Yale cardiologist who is an expert in this space and acknowledges the influence and perspective that the design process can provide. The second speaker is a design research and strategy professional who defined an inclusive and relational protocol that tapped into the deepest needs of the study community and translated them into the study materials. The third, is a visual designer who incorporated the learnings into patient education and study tools to overcome deeply ingrained perspectives on healthcare. This team and the outputs demonstrate how critical it is to have a team that brings in shared and lived experiences into service design.

Key Insights

  • Lack of interoperability between healthcare IT systems causes delays and disrupted patient care, as seen in John’s genomic test example.

  • Genomics England moved from a research project to an integrated platform supporting NHS routine care with genomic data.

  • Modular data services using common data standards enable flexible, reusable technical components for multiple healthcare applications.

  • Service designers at Genomics England work alongside engineers and bioinformaticians early to ensure technical infrastructure serves real-world needs.

  • Service maps help identify data transformation patterns to create standalone data service modules usable across different use cases.

  • Designing data services focuses on developers as primary users, enabling them to build clinician-facing services like cascade testing or trial selection.

  • Comprehensive documentation, developer tooling, and support channels are critical to developer adoption of data services.

  • Framing data services through patient and clinician perspectives helps stakeholders make informed decisions and fosters broader inclusion.

  • Service design applied at the technical data layer can have exponential impact by aligning infrastructure with business objectives and user needs.

  • Collaboration and curiosity enable service designers to overcome intimidation by technical layers and build shared language with developers.

Notable Quotes

"The lack of consistency between healthcare IT systems causes critical information delays and interrupted care."

"Data standards are like selecting English as the common language, even if systems natively speak Portuguese or Spanish."

"Service designers embedded in leadership can preempt strategic directions and influence technical projects early."

"We are designing data services for developers, not final clinician-facing experiences."

"APIs need to provide capabilities like verifying patient identity to ensure data access is accurate and secure."

"Imagine data capabilities as Lego bricks versus a box set with instructions to build specific models."

"Developer experience hinges on clear documentation, sandboxes, sample data, and responsive support."

"Speculative use cases connect technical components to human impact and help prioritize work into slices of value."

"Don't shy away from technical conversations; service designers should map data journeys like user journeys."

"The impact of service design at the data service level is exponential, making infrastructure more human scale."

Ignacio Martinez
Fair and Effective Designer Evaluation
2024 • DesignOps Summit 2024
Gold
Kelly Goto
Emotion Economy: Ethnography as Corporate Strategy
2015 • Enterprise UX 2015
Gold
Kayla Farrell
What It's Like To Be a User Researcher at Compass
2021 • Advancing Research 2021
Gold
Sahibzada Mayed
Cultivating Design Ecologies of Care, Community, and Collaboration
2023 • DesignOps Summit 2023
Gold
Alla Weinberg
Healing Toxic Stress
2024 • DesignOps Summit 2024
Gold
Gonzalo Goyanes
Design ROI: Cover a Little, Get a Lot
2022 • DesignOps Summit 2022
Gold
Brad Orego
Bringing Customer Research to More Internal Teams
2022 • Advancing Research 2022
Gold
Jake Burghardt
Stop wasting research: Unlock more value from research insights
2025 • Rosenfeld Community
Kevin Bethune
Reimagining Design: Unlocking Strategic Innovation
2022 • Design at Scale 2022
Gold
Ryan Rumsey
Business Influence Without Losing Your Soul
2021 • Enterprise Community
Allison Sanders
Operating with Purpose
2024 • DesignOps Summit 2020
Gold
Sheri Byrne-Haber
The Importance of Accessible Design Systems
2024 • DesignOps Summit 2020
Gold
Jen Briselli
Learning Is The Engine: Designing & Adapting in a World We Can’t Predict
2025 • Rosenfeld Community
Sol Mesz
Hands or Brains? How to Hire for Strategy, Strategically
2024 • Enterprise Experience 2020
Gold
Dan Donald
Design Systems as a Vehicle for Systemic Change
2023 • DesignOps Community
Alla Weinberg
Workers Are Sick of Change: The Cure is Psychological Safety
2023 • Enterprise UX 2023
Gold

More Videos

Yoel Sumitro

"Reflection in action involves noticing surprise, questioning assumptions, experimenting, and reflecting on the move."

Yoel Sumitro

Actions and Reflections: Bridging the Skills Gap among Researchers

March 9, 2022

Zariah Cameron

"Share everything, own nothing but credit everyone."

Zariah Cameron

ReDesigning Wellbeing for Equitable Care in the Workplace

September 23, 2024

Doug Powell

"We make the invisible visible and turn abstract strategy into something people can see, touch, and act on."

Doug Powell

DesignOps and the Next Frontier: Leading Through Unpredictable Change

September 11, 2025

Darian Davis

"We’re all capable of creating and perpetuating toxic work relationships."

Darian Davis

Lessons from a Toxic Work Relationship

January 8, 2024

Mike Oren

"I helped a company save 12 million dollars by not investing in an iris scanner in a one-week project."

Mike Oren

Why Pharmaceutical's Research Model Should Replace Design Thinking

March 28, 2023

Jacqui Frey

"My job is to make the head of design look super good."

Jacqui Frey

Scale is Social Work

March 19, 2020

Kim Holt

"Trust takes time, hard work, and consistency to build, especially in times of change when time is a luxury we don't have."

Kim Holt Emma Wylds Pearl Koppenhaver Maisee Xiong

A Salesforce Panel Discussion on Values-Driven DesignOps

September 8, 2022

Samuel Proulx

"You own the design system, which gives you the unique ability to integrate that accessibility thinking into all of your components."

Samuel Proulx

From Standards to Innovation: Why Inclusive Design Wins

September 10, 2025

Laine Riley Prokay

"Adding inclusivity to the career ladder took three years and this is still a living document with room for change."

Laine Riley Prokay

How DesignOps can Drive Inclusive Career Ladders for All

September 30, 2021